Director, Strategic Alliances and Advocacy

Why Join Us?   Be a hero for our rare disease patients   At Ultragenyx, we fundamentally believe that taking real impactful action to care for the needs of patients and our people is always the right thing to do. To achieve this goal, our vision is to lead the future of rare disease medicine. For us, this means going where other biopharma companies won’t go – challenging the status quo and creating a new model that advances our field so more patients and caregivers can benefit from life-changing treatments. We do this by following the science, applying a novel rapid development approach, making innovative medicines at fair and reasonable prices, and creating a collaborative ecosystem to reach patients in ways that are most meaningful for them. Our commitment and care for patients extends to our people, so culture is an essential cornerstone for Ultragenyx. We remain continuously focused on creating a supportive and inclusive environment of profound learning and growth – so employees can thrive in all areas of their lives, in and outside of work. Ultimately, we want to be an organization where we would be proud for our family, friends and children to work. If you want to have a meaningful impact, do the best work of your career, and grow a lot, both professionally and personally, come join our team.

Position Summary:

ultraimpact – Make a difference for those who need it most

Reporting to Vice President, Patient Advocacy, the Director, Strategic Alliances & Advocacy, will be responsible for building strategic alliances and advocacy campaigns and initiatives to support US policy, regulatory, commercial, and R&D priorities of Ultragenyx as part of Corporate Affairs. The incumbent will also lead Patient Advocacy material development, including the advocacy website, newsletter, and corporate materials. Finally, the incumbent will be responsible for patient advocacy engagement and strategy for 1-2 Programs in early-stage development. The Director will collaborate with a number of internal stakeholders including Corporate Communications, Policy & Government Affairs, the Program Teams, Legal / Compliance / Regulatory, Medical Affairs, Clinical Operations & Development, and Commercial / Brand Strategy. The Director should be located in the Boston or Washington, DC areas with the expectation to be in the Somerville, MA office on a regular basis.

Work Model: 

Remote: Officially documented as working full-time from home, with travel to Ultragenyx's offices or other locations on …